Supporting North Dakota Families Affected by Cystic Fibrosis

Making Treatment Accessible for Every CF Family


Living with cystic fibrosis presents challenges that no family should face alone. Monthly medication costs can exceed $3,000, with annual medical expenses reaching staggering amounts that can overwhelm even the most prepared households. At the Cystic Fibrosis Association of North Dakota, we believe that quality care shouldn't depend on a family's financial situation.


Your Support Creates Real Impact


Every day, we work to help North Dakota families #BreatheEasier by:

  • Covering essential medication costs not met by insurance
  • Providing medical equipment assistance
  • Supporting travel expenses for vital medical appointments
  • Offering matching funds for organ transplant expenses
  • Awarding college scholarships to promising students with CF
  • Advocating for improved healthcare coverage


 Together, We Make Breathing Easier


Since 1980, our community of supporters has helped us provide nearly two million dollars in direct assistance to North Dakota families affected by CF. Your donation today helps ensure that every person with CF receives the care they need, regardless of their financial circumstances.


Join Our Mission


When you support the Cystic Fibrosis Association of North Dakota, you become part of a dedicated community working to transform lives. Your gift helps families focus on what matters most - managing their health and pursuing their dreams - without the burden of overwhelming medical costs.



Make a difference today. Your donation helps North Dakota families affected by CF breathe easier - physically, financially, and emotionally.






MEDICATIONS

CFA pays for up to 25% of the uncovered cost of medications. CFA will pay up to 50% of the cost of prescribed or doctor-recommended nutritional or vitamin supplements when not covered by insurance Reimbursements will be made following receipt of a list of medications or explanation of benefits provided by the member’s pharmacy or insurance that indicates the name of the medication, the date, the price, the amount covered by insurance and the patient’s remaining responsibility. All reimbursements made for substances not covered by insurance, (those reimbursed at a 50% rate) must be at the direction, and with evidence of approval by their physician.

TRAVEL REIMBURSEMENT

Reimbursement for fuel transportation-related costs shall be consistent with that of the US General Services Administration (GSA). Mileage shall be calculated by CFA using internet map mileage delineation from the start and end point for the travel. If airline transportation is required for travel, reimbursements shall be made based on the current rate per mile traveled utilizing the same internet map mileage delineations used for automobile travel. Lodging (hotel/motel) will be reimbursed at a rate of up to one-hundred fifty dollars ($150.00) per night plus a meal per-diem for a maximum of two nights for travel more than two-hundred and fifty (250) miles one-way. A transportation worksheet (Link to worksheet above)must be completed.

COLLEGE ASSISTANCE

CFA philosophy is to assist young people who suffer from CF in becoming productive members of society.  College students can receive scholarship grants, or in the case of Graduate School, no-interest loans to cover those expenses that otherwise would be earned through work-study or part-time jobs. The rationale behind the scholarship program is to allow enough free time so that students will not have to choose between doing necessary inhalation and chest physiotherapy, and studying.
SCHOLARSHIP INFORMATION

ORGAN TRANSPLANT FUNDS

There are times when someone with cystic fibrosis has done everything they can to fight the disease and to maintain their relative state of health, and still their lung function has continued to diminish to a point at which lung transplantation must be considered. CFA is there to assist those members at that time. CFA will match up to $30,000 to assist with the costs related to that transplant.

HARDSHIP ASSISTANCE

This is based on individual circumstances.

NEWSLETTER

"#BreatheEasier" is the quarterly publication of the CFA.  The newsletter shares news about the Association, and reprints articles from other journals and publications about pertinent research and treatment. Read the latest issue here:

Breathe Easier Newsletter